Archive for October 2015


10/28/15 Post-Surgery Update

Ren is recovering well from the surgery after a one-night stay at the hospital.  The surgeon said it would be 1 or 2 nights there, and in my head I knew it would be only 1 night.  Ren recovers fairly quickly from surgeries below her hips, as she has little feeling down there.  Plus, she hates the I.V.  Wait – let me rephrase that.  She DESPISES with a PASSION that I.V. in her wrist.  That literally was the only thing that was upsetting to her.  Always  has.  And, I cannot say this enough.  I really, really, really dislike staying in the hospital.  I mean, I know that Ren was the patient and went through the surgery and was the brave and strong one, and I am just complaining when I say this, but I really just don’t like it!  It is long, and boring, and claustrophobic, and uncomfortable, and forget about being able to get any good sleep. But, enough about me.  Ren did get a few visitors – Grandma and three great-aunts surprised her with a visit and bearing gifts.  She loved every minute, of course.

As mentioned in the previous post, the surgeon’s task was to straighten Ren’s leg out.  What that means is, he had to ROTATE her leg, which involved moving it and putting screws in, and a plate in the ankle.  I cringe as I think about it.  She is currently in a splint that goes up the whole length of her leg.  This must remain elevated at all times, which means limited movement and full-time wheelchair or sitting/lying down.  She has a rental wheelchair that allows for her leg to be elevated, and that seems to be working alright.  She is ready for it to be off already, so it’ll be a long road for her!

So, despite a little scare with her having a 101.4 fever last night ~ turns out she just needed to do some more deep breathing to get her lungs opened up more ~ she is starting well in her recovery.  Thanks to all of our friends and family who showed us their support and offered their prayers ~ It means a lot.  I ended up being more nervous for this surgery than I thought I would be.  I mean, she has been through several surgeries, including a few much more major surgeries in the past, so I don’t know why.  But, after she was rolled off to the operating room, with more prayers being said, I was at peace.

“And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.” Phillipians 4:7



10/22/15 Upcoming Surgery

As the heading suggests, Ren has an upcoming surgery… in this coming Monday, assuming her little cold does not get any worse.  Her right foot and leg are turning outward, so we need to get it straightened out. It will be a 2 hour surgery, and she will need to stay in the hospital at least one night, possibly two.  She will need to wear a splint up to her thigh for the first two weeks, as well as keeping it elevated at all times, and then it will be switched to a cast below the knee for another 4-6 weeks.  Prayers for a safe, successful surgery, as well as a quick and uncomplicated recovery would be appreciated!  The hope is that with her leg straightened out, we can then focus on strengthening her legs and torso so as to learn how to walk with arm crutches.  That would be awesome.

Also – We had Spina Bifida Clinic last week.  The greatest update from our day long visit is that we are switching her bladder medicine, Oxybutynin, to a different medicine, because oxy crosses the blood-brain barrier, and T found a study that shows an increase of dementia in older patients who have been using this medicine.  The effect is the greatest if used 5 years.  Ren has been on oxy for about 5 years.  Though not sure if this is why she seems to have some cognitive delays, we are totally going to check it out.  So, she is now taking a one-a-day pill that does NOT cross the blood-brain barrier.  We shall see if anything comes from it.

Ren just finished up her last swimming lesson today.  She took 6 weeks of 1:1 lessons at the YMCA, and of course she loved every minute of it.  She LOVES swimming and would do it all day if we let her.  I see potential for her to swim independently some day!

AND – It is has been over THREE years since her last seizure. She is still being weaned off of her seizure medication and has gone down from 5 mL twice a day to 1 mL twice a day.  If all continues to go well, she will be completely off them in December.  Please pray for a seizure-free LIFE for Ren!

October is Spina Bifida Awareness month.  Please spread the word about how spina bifida does not mean a hopeless future, and walking does not equal happiness.  Just look at Ren.    God is good.  All the time.  And He does NOT make mistakes!