Archive for May 2013

 
 

5/29/13 Race!!

Last Saturday, Ren got to participate in a 10K run.  It was such a fun and amazing experience.  I would do it again in a heartbeat.

The run was organized through an organization called myTeamTriumph.  They collaborate with other organizations and partner up with another race,  and basically set everything up for the teams, including providing strollers for the individuals with physical disabilities – kids through adults, who are considered the “captains” of the team – to ride in.   Ren was the “captain” of her team, which consisted of five “angels”, who ran together, taking turns pushing her.  Her angels included me and Tony, her aunt and uncle, and a friend.

This particular race was part of the Madison 10K Twilight run.  At this same race last year, there were 3 myTeamTriumph teams.  This year, there were 6.  Everyone was so wonderful and happy and excited.   We all had our pictures taken in front of the capitol before the race, and all of our kids and nephews and my parents were given red myTeam Triumph volunteer shirts, since they were kind of part of the team too.

The myTeamTriumph teams began first, at 7:50 p.m.,  10 minutes ahead of the rest of the runners.  Because it was in the evening, we all had glowsticks, and Ren’s stroller was decorated with Dora balloons, streamers, and a glowstring.  As we ran, people cheered, and as runners passed us (which many did!), several shouted things like, “Way to go, guys!”  or “You guys are awesome!” or, my favorite, “Good job, Renaya!”  It truly was a FUN run.  Everyone was SO supportive.  I have not been a part of a race since college, and this was no doubt the best race I have been in.  It was relaxing, we talked and laughed the whole way (except Tony, whom was the only non-runner in the group – he was just happy to finish the race!), and, most importantly, Ren had a great time.  The best part was the stretch to the finish line, where music was playing, lights were shining, the crowd was cheering, names were being announced as we came, our kids and parents were waving to us, and Ren crossed the finish line, with her angels surrounding her.

It was such a wonderful experience.  Ren really was treated like a rock star that night, as were the other 5 captains.  Because they deserve it.

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5/23/13 Tubes Out

Today we went to the Children’s Hospital for a 6-week follow-up appointment for Ren’s MACE and mitrofanoff surgeries.  The big step — they took out the tubes that have been in her abdomen area since the surgeries.   We will now cath her through her belly button.  We have done it a couple of times, and it is a little strange inserting a catheter into her belly button and having pee come out.  :)   We also will insert a catheter into the hole next to her belly button, for when it is time to sit her on the toilet and flush her colon/bowels.  We have to keep a “plug” in that hole for a couple of months, though, to ensure it does not close up.  The plug kept coming out today, I think due to the type of tape we were using.  The second picture below shows our attempt of taping it tonight.  I guess we will see in the morning if it holds.  The red sore-looking areas around the areas are due to the stitches, which we just taken out today, and should lighten up and heal soon.  (The lighter redness around the whole area is from all the taping down of gauzes we had to do these past 6 weeks – That should heal soon now too).

Ren has no restrictions with these “holes” – even while needing the plug.  She can go swimming – yah!  Which is good, since she starts up swimming again in a couple of weeks.  She will also be starting up Horse therapy lessons as well.  Summer is almost here!

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