Ren had her Botox procedure done today. It was a fairly short procedure, in and out of the operating room in a little more than an hour. As usual, she was a hoot beforehand, giggling and being silly in the pre-op room, making everyone laugh. Even being rolled into the operating room, the Childlife Specialist said she was happy-go-lucky. Once in the operating room, she got a little nervous when everyone starting bustling about, but cooperated and put the mask on and was out. AFTER the procedure, in the recovery room, though, is always a different story. There are only two situations when Ren is cranky and upset. One, is when her brothers tease and annoy her. Two, is coming out of anesthesia. She cries and cries and nothing can comfort her. Scratch that – the one thing that makes her a little less cranky is getting the IV out, which of course they will not do until they know for sure she is fine. She needs to be able to keep down liquids, do some coughing, etc., which in this case was a relatively quick 20ish minutes. She does seem to take about a half hour or so to start acting more like herself, with or without the IV. It’s just that the IV causes even further stress and anxiety.
The doctor said it all went well, but that the Botox usually takes about 2 weeks to do its job. In a month, she will go in again for another urodynamics study to see if her bladder pressure is better, to determine if it has worked or not. Please pray it works!
I am in a couple of Facebook support groups for spina bifida, which I am sooooo glad I am, because I learn SO MUCH, get so much information, by reading the conversations that go on in there. Anyway, in a recent conversation, some adults with SB were talking about how they do not like it when parents share personal information, such as regarding bathroom issues, about their children in blogs or whatnot, because when it’s out there on the Internet for anyone to see and know about….it becomes too personal, especially when they are older kids/teenagers. Which made me think about all that I share about Ren, and wonder if it is too much. So, I am going to probably rethink things in the future as to what, or at least how, I share information about her. I started this blog for two reasons: to update family and friends whom wanted to keep up with what was going on with Ren, and to have something out there for others whom want to learn more about spina bifida – maybe parents whose baby was just diagnosed in the womb, for example – so they could find some accurate information out there. So they know that though it may not always be easy, it is always worth it. And hopefully seeing pictures of happy Ren is will provide all the information they need. So, I want to keep sharing information….I just might make sure it is still shared in a way that would not harm Ren’s integrity.