As the heading suggests, Ren has an upcoming surgery…..as in this coming Monday, assuming her little cold does not get any worse. Her right foot and leg are turning outward, so we need to get it straightened out. It will be a 2 hour surgery, and she will need to stay in the hospital at least one night, possibly two. She will need to wear a splint up to her thigh for the first two weeks, as well as keeping it elevated at all times, and then it will be switched to a cast below the knee for another 4-6 weeks. Prayers for a safe, successful surgery, as well as a quick and uncomplicated recovery would be appreciated! The hope is that with her leg straightened out, we can then focus on strengthening her legs and torso so as to learn how to walk with arm crutches. That would be awesome.
Also – We had Spina Bifida Clinic last week. The greatest update from our day long visit is that we are switching her bladder medicine, Oxybutynin, to a different medicine, because oxy crosses the blood-brain barrier, and T found a study that shows an increase of dementia in older patients who have been using this medicine. The effect is the greatest if used 5 years. Ren has been on oxy for about 5 years. Though not sure if this is why she seems to have some cognitive delays, we are totally going to check it out. So, she is now taking a one-a-day pill that does NOT cross the blood-brain barrier. We shall see if anything comes from it.
Ren just finished up her last swimming lesson today. She took 6 weeks of 1:1 lessons at the YMCA, and of course she loved every minute of it. She LOVES swimming and would do it all day if we let her. I see potential for her to swim independently some day!
AND – It is has been over THREE years since her last seizure. She is still being weaned off of her seizure medication and has gone down from 5 mL twice a day to 1 mL twice a day. If all continues to go well, she will be completely off them in December. Please pray for a seizure-free LIFE for Ren!
October is Spina Bifida Awareness month. Please spread the word about how spina bifida does not mean a hopeless future, and walking does not equal happiness. Just look at Ren. God is good. All the time. And He does NOT make mistakes!